Homeland Hospice, a nonprofit outreach program of Homeland Center in Harrisburg, will host its 10th annual 5K and Memory Walk on Saturday, Sept. 14, at 8:30 a.m. at the Rossmoyne Business Center at 5000 Ritter Road in Mechanicsburg. The event serves to remember loved ones lost and raise funds to support those who need care today.

“The purpose of the Homeland Hospice 5K and Memory Walk is to remember,” said Homeland Hospice Assistant Director of Development Myra Badorf. “It is for families to remember their loved ones and for Homeland, as an organization, to remember and honor the community and people we are blessed to care for on a daily basis. We are grateful for the generous support of local businesses and individuals who make this special annual Homeland tradition possible.”

Homeland Hospice depends on the generosity of donors for its enhanced care for hospice patients such as massage therapy, music therapy, and extra in-home-relief hours for caregivers, as well as for residents at Homeland Center whose financial resources have been exhausted.

Runners and walkers of all ages are welcome. The top three 5K male and female champions will receive cash prizes – $350 for 1st place, $150 for 2nd place and $100 for 3rd place. Ribbons will also be presented to the top three male and top three female finishers in eight different age brackets. Additional prizes will include largest team, oldest and youngest participants, and treats for all the adorable dogs. After the 5K and Memory Walk, Homeland will honor loved ones, provide light refreshments and award the event prizes.

The event is open to the public and online registration is now open. In-person registration also will be available on race day from 7:15 to 8:15 a.m. Registration is required to participate in the event. Homeland Hospice is also seeking 5K and Memory Walk sponsors. Visit the event page for more details.

By Kristine Crockett, RN, CHPN, Director of Homeland Hospice and Homeland Palliative Care. Kristine has been providing compassionate end-of-life care as a hospice nurse for more than 25 years and provides a wealth of knowledge and experience to those she is leading as the director. Kristine is an Army Veteran having served in the military for over nine years as a military police and corrections officer. She enjoys spending time with her family and friends at gatherings and vacations on the lake, as well as helping out her staff and finding ways to support fellow Veterans whenever possible.

Hospice care is a vital resource designed to provide compassionate support to individuals facing life-limiting illnesses. However, despite its benefits, hospice remains significantly underutilized in many communities. This trend raises important questions about why individuals and families may not be accessing this valuable service when they need it most.

One key factor contributing to the underutilization of hospice care is a lack of awareness and understanding. Many people are unfamiliar with hospice and may mistakenly believe that it is only appropriate for individuals in the final days or weeks of life. Hospice care is most effective when accessed earlier in the journey of a life-limiting illness, allowing patients and their families to benefit from comprehensive support, pain management, and emotional care for a longer duration.

Furthermore, cultural and societal attitudes toward death and dying play a significant role in shaping perceptions of hospice care. In some cultures, discussions about death may be considered taboo or uncomfortable, leading individuals to avoid conversations about end-of-life care until it becomes unavoidable. This reluctance to confront mortality can prevent individuals from seeking hospice services until it is too late to fully benefit from them.

Financial concerns also contribute to the underutilization of hospice care. While hospice services are typically covered by Medicare, Medicaid, and most private insurance plans, some individuals may be unaware of their coverage options or may be reluctant to incur additional expenses related to end-of-life care. This financial barrier can prevent individuals from accessing hospice services until their illness has progressed to a point where the benefits of hospice may be limited.

Additionally, healthcare provider attitudes and practices can influence the utilization of hospice care. Some healthcare professionals may be hesitant to broach the topic of hospice with patients and their families, fearing that it may be perceived as giving up hope or admitting defeat. This reluctance to discuss end-of-life care options can delay access to hospice services and limit the ability of patients and their families to make informed decisions about their care.

Addressing the underutilization of hospice care requires a multifaceted approach that involves raising awareness, promoting cultural competence, addressing financial barriers, and improving communication between healthcare providers and patients. Education campaigns aimed at dispelling myths and misconceptions about hospice can help individuals and families understand the benefits of early intervention and comprehensive end-of-life support.

Healthcare providers should receive training on how to initiate conversations about hospice care in a compassionate and sensitive manner, ensuring that patients and their families are fully informed about their options. By addressing these barriers, we can work towards ensuring that all individuals facing life-limiting illnesses have access to the support and care they need to live their final days with dignity and comfort.

National Cancer Institute. Choices for Care When Treatment May Not be an Option

Medicare.gov.Hospice care

Shalev A, Phongtankuel, Kozlov E, Shen MH, Adelmand R, Reid MC. Awareness and misperceptions of hospice and palliative care: A population-based survey study. Am J Hosp Palliative Care. 2018 Mar; 35(3):431-439. Doi:10.1177/1049909117715215

A hallmark of a successful organization is its ability to evolve to meet the needs of its community. For more than 156 years, Homeland Center has structured its programming to meet the needs of its patients and their families. In 2022, Homeland started offering palliative care, a new and valuable outreach service, to provide a greater continuum of care for its patients. The addition of palliative care services helps patients with a serious illness have a better quality of life.

Palliative care may be appropriate if a patient suffers from pain, stress or other symptoms due to a serious illness. These diseases may include cancer, chronic obstructive pulmonary disease (COPD), congestive heart failure (CHF), liver disease, kidney disease, Parkinson’s, amyotrophic lateral sclerosis (ALS), dementia, stroke, HIV/Aids and other serious illnesses. Palliative care is based on the needs of the patient, not on a specific diagnosis, and can be provided along with curative treatment.

The goal of palliative care is to reduce and eliminate symptoms such as pain, fatigue, depression, anxiety, difficulty sleeping, shortness of breath, constipation, nausea, vomiting and loss of appetite.

“Offering palliative care services is another critical line of support we can offer patients,” says Dr. David Wenner, Assistant Medical Director for Homeland Hospice. “This form of care often helps patients avoid emergency room visits due to uncontrolled symptoms and other issues related to the disease.”

Similar to Homeland’s other at-home services, palliative care can be administered any place a patient calls home. The convenience and comfort of receiving care at home has driven the demand for the creation of a palliative care program.

“For patients who are homebound because of a serious illness, this service brings them comfort,” says Hadiza Fox, a registered nurse practitioner at Homeland. “We provide our patients the highest quality of care in their personal space.”

“Each patient is unique and requires a personalized approach to care,” Dora Butler, a registered nurse practitioner at Homeland, adds. “The Homeland team works together, along with a patient’s other health care providers, to ensure that care is consistent, compassionate and individualized.”

In their roles with Homeland, Hadiza and Dora help patients with palliative care support. They work with each patient to provide a comprehensive evaluation of the patient’s medical condition as well as the needs of the family. They then set goals for the type of care needed to ensure the best quality of life possible.

Hadiza shares an example of when she met with a patient who was homebound and in significant pain. She evaluated the patient’s immediate need for symptom management and contacted the primary physician, pharmacy and insurance company. In one visit, she helped solve the patient’s immediate needs and addressed the ancillary concerns.

“I like to think we are the glue that holds the pieces of care together,” Hadiza says. “It is a privilege to help people when they need it most.”

Palliative care is sometimes mistaken for hospice care; however, they are not the same. Hospice care is provided at the end of life. Palliative care may be provided at any time during a person’s illness and is often offered to patients at the same time they are receiving potentially life-prolonging or curative treatments. Palliative care does not prevent patients from receiving other healthcare services, treatments or procedures.

Palliative care also helps patients and families better understand an illness and assists with complex medical decision-making. Central to palliative care is that a patient’s care team fully understands the patient’s goals and values, so they can make the best care choices possible. Homeland’s Palliative Care team consists of board-certified nurse practitioners, a licensed social worker and a physician medical director.

For more information on Homeland’s Palliative Care program or to request a consultation, call (717) 857-7403.

What do social workers do? At Homeland, they help families navigate the complexities that are often involved with caregiving.

“The hard work shouldn’t be on the family,” said Homeland social worker Amanda Williams. “They should just be coming to visit their loved ones. They shouldn’t have to worry about the other stuff. The hard work should be on us.”

March is Social Work Month, a time to recognize social workers and their dedication to serving as advocates to those in need. Homeland Center’s social work office is led by Director of Social Services Daniqwa Buckner and her assistant director Amanda. Together, they ensure residents and families feel at home.

Daniqwa joined Homeland in October 2020. She earned her bachelor’s degree in social work from Messiah University and her master’s from Temple University.

Amanda knew from childhood when her parents struggled to find care for her ailing grandmother that she wanted a career in social work. Originally from Souderton, she earned her bachelor’s degree from Elizabethtown College and her master’s from Marywood University.

Daniqwa and Amanda describe social workers as connectors. They meet with residents when they first come to Homeland, whether for a long-term or short-term rehab stay. Navigating the system means linking residents with people and resources inside Homeland — dietitians, therapists, unit managers, and activities. The introductions provide assurance that needs are taken care of and that there’s always someone to turn to.

Amanda is often the social worker helping residents who come to Homeland for short-term rehab stays. When they are discharged, she puts together the puzzle pieces of home health care, therapy and insurance, working longstanding connections with Homeland at Home and other providers in the community to ensure a safe and productive transition.

“Whatever comes next, we want them to have the best quality of life,” said Amanda.

Strong communication skills are essential in social work. Amanda makes it clear to families that she wants to know about a resident’s needs “in the moment” when they can be addressed quickly and efficiently.

Social workers are also detail-oriented multitaskers, attuned to subtle changes and differing needs. At Homeland, they are key team members, reviewing residents’ daily well-being. They work with assistant directors of nursing, admissions, quality assurance and activities, and therapy. Constant communication with unit managers creates a “buddy system” that keeps everything focused.

“There are multiple components to every resident,” said Daniqwa. “There’s no black and white. There are gray areas, so you have to think out of the box and be flexible to make it a full picture.”

Social Work Month, sponsored by the National Association of Social Work, is a time for recognizing the hard work of social workers and their role “beside the families, fighting the battle,” in Daniqwa’s words. They are highly educated professionals who must earn 30 credit hours of continuing education every two years to maintain licensure.

Those credits keep social workers updated on the latest research in elder care. Their knowledge of dementia and behaviors equips them to educate families about changes a loved one may experience.

In one recent case, the wife of a new resident was struggling to understand her husband’s dementia diagnosis. Daniqwa helped guide her through getting to know the new person he had become.

“We helped her understand that it’s not him, it’s the disease,” said Daniqwa. “She told us that the education we provided helped create some ease in her.”

The care social workers provide for the families of Homeland residents and patients brings comfort directly to the residents and patients.

“They’re more relaxed because their family members are relaxed,” said Amanda.

A love connection often begins at the most unexpected time. An ordinary day can be the start of an extraordinary relationship. Call it destiny or luck, 40 years ago on a cold and wintry day, Phil Talarico saw his now wife Barbara waiting for the bus to go to work. He offered her a ride and the two have been together ever since. The couple has created a beautiful life filled with faith, family and love of serving others, including volunteering with Homeland Hospice.

Before that momentous winter day, Barbara and Phil knew each other from their coworkers. On Thursday nights, Barbara and Phil would join their friends who worked at various departments at the State of Pennsylvania for a night out. Conversation was easy on their first ride to work and soon the couple was carpooling regularly.

“Most people looked forward to the weekends,” Barbara says. “I looked forward to the weekdays so I could see Phil.”

Barbara and Phil were married a year and half later. They recently celebrated their 38th wedding anniversary and have two grown children. For the past three decades, the couple has lived in Mechanicsburg. They began volunteering for Homeland after retiring more than 10 years ago. Barbara’s mother had received excellent care through a hospice organization in Altoona and the couple had a friend living at Homeland Center.

“Several signs pointed us to Homeland,” Barbara adds. “We were ready to jump right in to helping out.”

Barbara and Phil completed a comprehensive volunteer training program provided by Homeland before visiting patients receiving hospice care. Barbara’s first patient was Charlie who quickly became a grandfather figure to her. Charlie was under care for more than two years which gave Barbara time to get to know him and hear his life story.

“Charlie was family to me,” Barbara says. “I was heartbroken when he died.”

Phil understands the heartache and wonderment of life that comes when you walk with a patient on their end-of-life journey. Phil’s most memorable patient was a young man who passed away at 30-years-old.

“I cried my eyes out when he died,” Phil says. “It was one of the saddest moments in my life.”

During his time with a different patient, Phil was by the man’s side as he was actively dying. The man told Phil he saw an angel standing close to Phil. The utter awe of this moment stays with Phil to this day.

“I have read books about people describing their experiences as they are close to death,” Phil adds. “I was blessed to hear this firsthand.”

In addition to patient visits, Barbara and Phil participate in the Wreaths Across America event held each December across the country. Locally, Homeland Hospice holds a wreath-laying ceremony at Dauphin County Cemetery. Volunteers place wreaths and flags on the fence outlining the cemetery. The flags represent each branch of the military, soldiers missing in action and prisoners of war.

The couple has also helped support countless Homeland events like the Homeland Hospice 5K and Memory Walk and remembrance dinners. This shared volunteer experience helps the couple further connect and bond.

“I learn so much from the patients I visit,” Phil adds. “I enjoy telling Barbara about my experiences.”

Barbara has also taken on administrative duties at Homeland’s office. She volunteers to make bereavement calls and helps with mailings and general office duties. This has given her added insight into the scope of Homeland’s work.

Barbara and Phil exemplify the power of compassionate volunteerism in action. Their positive spirit and love for others fill the hearts of those around them, especially those of the hospice patients they serve.

“We love Homeland,” Barbara says. “We can’t imagine our lives without this organization.”

For more information on how to volunteer with Homeland, call (717) 222-7890.